[Treatment of hemophilia by self-infusion: clinical and psychological approach (author's transl)].
Twenty-seven hemophiliacs between the ages of 12 and 17 volunteered in a self-infusion training program. An attempt was made to define a teaching method. It consisted of teaching them about the disease so as they would be able to recognise the site of their bleeding and the limitations of self-treatment. They also acquired dexterity in infusing themselves with various antihemophilic factor concentrates. Systematic clinical and psychological studies were undertaken and showed that this method of treatment gave a considerable improvement of the overall disability. At the same time the number of transfusions almost doubled. Self-treatment has been found successful among children over 13 years of age who are strongly motivated, intelligent, sensitive, and able to adapt themselves to concrete situations. This training has failed in 30% of the children in whom psychological disturbances have been found. In spite of this failure, a psychological improvement was noted.
D000293:Adolescent; D002648:Child; D005169:Factor VIII / Q000627:therapeutic use; D006395:Hemarthrosis / Q000188:drug therapy; D006467:Hemophilia A / Q000188:drug therapy*; D002836:Hemophilia B / Q000188:drug therapy*; D006470:Hemorrhage / Q000628:therapy; D006801:Humans; D007361:Intelligence Tests; D007406:Interview, Psychological; D007719:Knee Joint; D010477:Perfusion / Q000379:methods*; D010817:Physician-Patient Relations; D000297:Psychology, Adolescent; D012392:Rorschach Test; D012651:Self Medication; D013997:Time Factors
D005169:Factor VIII
Traitement de l'hémophilie par l'auto-perfusion. Etude clinique et psychologique