title: Huntington's disease: the establishment of a national register.
abstract: The historical background of Huntington's disease in Australia is briefly described, together with the development of professional and self-help groups. An existing Huntington's disease register in Victoria is described in detail. A case is made for the need for the establishment of an Australia-wide register of Huntington's disease. Certain ethical issues and safeguards necessary to such a register are discussed.
mesh_terms: D001315:Australia; D003219:Confidentiality; D004992:Ethics, Medical; D005817:Genetic Counseling; D006801:Humans; D006816:Huntington Disease / Q000453:epidemiology*; D012042:Registries