title: Grief response of parents to neonatal death and parent participation in deciding care.
abstract: We determined the grief response to neonatal death of 50 mother-father pairs by administering a questionnaire and conducting a semistructured interview during the infant postmortem review. As measured by a parent grief score, maternal grief significantly exceeded paternal grief (t = 5.89, P less than .0001). Parent grief was not significantly related to birth weight, duration of life, extent of parent-infant contact, previous perinatal loss, parent age, or distance from the hospital of birth to the regional center (Pearson product-moment correlation coefficients). However, the attitudes and behavior of family, friends, and health care personnel in the hospital of birth often adversely influenced parent grieving. Of 39 mother-father pairs whose infants required respirator support, 18 participated in a group decision with their physician to withdraw respirator support when the prospects of infant survival seemed hopeless (limited respirator care group). No significant differences in parent grief scores were found (t tests) when the limited respirator care group was compared to those parents of infants who died despite uninterrupted respirator care. Our data suggest that informed parents can participate as partners with their physician in difficult infant care decision, even when death results, and adjust to their loss with healthy grieving.
mesh_terms: D001293:Attitude to Death; D003256:Community Participation; D003657:Decision Making; D004644:Emotions; D005260:Female; D005500:Follow-Up Studies; D006117:Grief; D006801:Humans; D007231:Infant, Newborn; D007232:Infant, Newborn, Diseases / Q000401:mortality*; D007406:Interview, Psychological; D008020:Life Support Care; D008297:Male; D010287:Parent-Child Relations; D013398:Sudden Infant Death / Q000523:psychology*; D011795:Surveys and Questionnaires; D012122:Ventilators, Mechanical