It doesn't end with death. Grieving and genetic counseling.
D003643:Death; D005260:Female; D005817:Genetic Counseling; D006117:Grief; D006801:Humans; D007223:Infant; D008297:Male; D011247:Pregnancy; D011296:Prenatal Diagnosis; D011368:Professional-Family Relations; D012497:Sandhoff Disease / Q000175:diagnosis / Q000235:genetics