An educational and counseling program for phenylketonuric adolescent girls and their parents.
Since adolescent girls with phenylketonuria are in need of informed counseling, parents and their phenylketonuric daughters were invited to five successive group meetings at Children's Hospital Medical Center in Boston. During these sessions the staff reviewed general aspects of the disorder, dealt with particular problems of adolescence, and focused primarily on the complexities relating to maternal phenylketonuria. Subsequent lively discussions allowed the participants to express their feelings and concerns relative to these issues. The information conveyed will assist parents and their daughters in realistic planning for the future.
D000293:Adolescent; D001900:Boston; D003376:Counseling; D004495:Education of Persons with Intellectual Disabilities; D005193:Family Planning Services; D005260:Female; D006776:Hospitals, Pediatric; D006801:Humans; D010290:Parents / Q000193:education*; D010353:Patient Education as Topic; D010661:Phenylketonurias / Q000178:diet therapy / Q000235:genetics; D011247:Pregnancy; D012736:Sex Education