title: Families of adolescent children with Usher's syndrome: developing services to meet their needs.
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D003638:Deafness; D005190:Family; D005260:Female; D006801:Humans; D008875:Middle Aged; D012174:Retinitis Pigmentosa; D013577:Syndrome