[Studies on the socio-medical and psychological situation of persons suffering from osteogenesis imperfecta tarda (author's transl)].
A group of 22 patients suffering from osteogenesis imperfecta tarda were evaluated on their school and vocational education, sport activities as well as personality development with the help of follow-up studies, questionnaires or medical records. 21 patients had at least received elementary school education and had been average or good pupils. Five of six patients who had meanwhile reached adulthood had received higher education and vocational training. Owing to their disease five of six patients had to give up their original jobs or occupational plans. There was only one female patient who had received vocational guidance. Of ten children and six adults five and four respectively carried out sports in their leisure time. To improve the patients' situation it is immediately necessary that (1) the parents be informed of the nature of the disease as well as its heridity, and be advised how to handle these children; (2) the patients and their parents receive educational and vocational guidance.
D000328:Adult; D002648:Child; D002657:Child Development; D004522:Educational Status; D005260:Female; D005860:Germany, West; D006266:Health Education; D006801:Humans; D008297:Male; D009790:Occupations; D010013:Osteogenesis Imperfecta; D010553:Personality Development; D012189:Retrospective Studies; D012917:Social Adjustment; D014830:Vocational Guidance
Untersuchungen zur sozialmedizinischen und psychologischen Situation der an Osteogenesis imperfecta Leidenden