title: Measurement of quality of life in bone marrow transplantation survivors.
abstract: This study was designed to assess the reliability and validity of a Quality of Life (QOL) instrument on a sample of 179 allogeneic Bone Marrow Transplant (BMT) survivors. The QOL-BMT tool was developed specifically for this population and was based on the investigators' prior research and a conceptual model of Quality of Life. Patients who were at least 100 days post BMT completed the 30 item visual analogue questionnaire. The instrument measured physical symptoms (e.g., weight loss, frequent colds, skin changes, cataracts, sexual problems), psychological symptoms (e.g., worry about recurrence, adjustment to illness), social concerns (e.g., relationship adjustment, return to work), and spiritual well-being (e.g., sense of control, future goals). Psychometric analysis of the instrument included measures of reliability and validity. The study findings demonstrate the unique aspects of QOL dimensions in BMT survivors and the value of QOL assessment in clinical practice and research.
authors.affiliation: Department of Nursing Research and Education, City of Hope National Medical Center, Duarte, CA 91010.
authors.forename: M
authors.initials: M
authors.lastname: Grant
authors.forename: B
authors.initials: B
authors.lastname: Ferrell
authors.forename: G M
authors.initials: GM
authors.lastname: Schmidt
authors.forename: P
authors.initials: P
authors.lastname: Fonbuena
authors.forename: J C
authors.initials: JC
authors.lastname: Niland
authors.forename: S J
authors.initials: SJ
authors.lastname: Forman
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D016026:Bone Marrow Transplantation / Q000523:psychology*; D002648:Child; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D008875:Middle Aged; D011594:Psychometrics; D011788:Quality of Life; D015203:Reproducibility of Results; D012494:Sampling Studies; D011795:Surveys and Questionnaires