title: [Support following pregnancy termination for genetic indications: experiences of involved women and their partners].
abstract: By means of semistructured interviews with 40 women and their partners data were collected concerning on the one hand the care and support and on the other the grieving after termination of pregnancy performed because the child appeared to be genetically affected. Crucial in the grieving process is having to choose personally for or against termination of the pregnancy. This grieving process can be complicated by factors such as uncertainty concerning either the evidence of the disease or its prognosis, high recurrence risk, negative self-esteem, feelings of failure and pre-existent relational or personal problems. Clear and complete counselling, combined with structural support during the hospital stay, proves to be the basis of adequate care. Follow-up interviews after the hospital stay play a supporting part, both for the hospital workers and for the couple involved.
authors.affiliation: Klinisch Genetisch Centrum Utrecht.
authors.forename: H G
authors.initials: HG
authors.lastname: van Spijker
authors.forename: M
authors.initials: M
authors.lastname: Korenromp
authors.forename: H R
authors.initials: HR
authors.lastname: Iedema-Kuiper
authors.forename: J
authors.initials: J
authors.lastname: Bergsma
authors.forename: F A
authors.initials: FA
authors.lastname: Beemer
authors.forename: G C
authors.initials: GC
authors.lastname: Christiaens
mesh_terms: D000028:Abortion, Induced / Q000523:psychology*; D000359:Aftercare; D000013:Congenital Abnormalities; D003657:Decision Making; D005260:Female; D005817:Genetic Counseling; D006117:Grief; D006801:Humans; D008297:Male; D011247:Pregnancy; D012649:Self Concept; D012944:Social Support
vernacular_title: Opvang na zwangerschapsbeëindiging op genetische indicatie: ervaringen van de betrokken vrouwen en hun partners.