title: Living with chronic pediatric liver disease: the parents' experience.
abstract: Parents' perceptions of living with a child with serious, chronic liver disease were explored using a qualitative methodology. Six central themes emerged from interview transcriptions: beginning, sense of inadequacy and guilt, pain and stress, lack of control, taking control, developing a personal philosophy, and uncertainty and fear of the future.
authors.forename: N B
authors.initials: NB
authors.lastname: Simon
authors.forename: D
authors.initials: D
authors.lastname: Smith
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D002648:Child; D002668:Child Rearing; D002675:Child, Preschool; D002908:Chronic Disease; D004509:Education, Nursing, Continuing; D005239:Fear; D005260:Female; D006801:Humans; D007223:Infant; D007389:Internal-External Control; D008107:Liver Diseases / Q000523:psychology*; D008297:Male; D010290:Parents / Q000523:psychology*