title: Right not to know or duty to know? Prenatal screening for polycystic renal disease.
abstract: New dimensions in different ethical scenarios following genetic information require new medical-ethical Action Guides for physician-patient interaction. This paper discusses the ambiguity in moral choice between a "right not to know" and "a duty to know", regarding parental decision-making pro or contra selective abortion following prenatal screening for autosomal dominant polycystic kidney disease (Potter III) and related public policy issues.
authors.affiliation: Department of Internal Medicine, Medizinische Akademie Magdeburg, Germany.
authors.forename: R
authors.initials: R
authors.lastname: Kielstein
authors.forename: H M
authors.initials: HM
authors.lastname: Sass
mesh_terms: D000029:Abortion, Legal; D000328:Adult; D001755:Blastocyst; D004992:Ethics, Medical; D005260:Female; D005820:Genetic Testing / Q000331:legislation & jurisprudence*; D005858:Germany; D006291:Health Policy; D006801:Humans; D008297:Male; D008875:Middle Aged; D010290:Parents; D010344:Patient Advocacy / Q000331:legislation & jurisprudence; D016891:Polycystic Kidney, Autosomal Dominant / Q000235:genetics*; D011296:Prenatal Diagnosis; D011315:Preventive Medicine / Q000331:legislation & jurisprudence; D014342:Truth Disclosure