title: Self-regulation and assessment approaches for vaso-occlusive pain management for pediatric sickle cell anemia patients.
abstract: An interdisciplinary program with the goal of teaching self-regulation and minimizing excessive narcotic use in the management of vaso-occlusive pain (V-O) in pediatric sickle cell anemia patients is described. A small group of patients do not respond well to any of our outpatients or inpatients medical regimens, leading us to suspect that psychological factors are influencing pain reports. We outline our multi-faceted assessment approach to evaluating such psychological factors, which includes a pain flow sheet, symptom check list, and a psychophysiologic profile. Published reports of self-regulation training including biofeedback, relaxation/imagery, and hypnosis have been associated with decreased pain symptoms, reduced number of emergency room and hospital visits for pain, decreased narcotic use, and increased school attendance. A case study of a nine-year-old patient with sickle cell disease is described before and after self-regulation training. Finally, other alternative approaches that avoid excessive narcotic use are discussed with some case reports.
authors.affiliation: Rainbow Sickle Cell Anemia Center, Rainbow Babies & Childrens Hospital, Cleveland, Ohio.
authors.forename: H
authors.initials: H
authors.lastname: Hall
authors.forename: K
authors.initials: K
authors.lastname: Chiarucci
authors.forename: B
authors.initials: B
authors.lastname: Berman
mesh_terms: D000223:Adaptation, Psychological; D000755:Anemia, Sickle Cell / Q000503:physiopathology / Q000523:psychology*; D001143:Arousal / Q000502:physiology; D001676:Biofeedback, Psychology / Q000502:physiology; D002648:Child; D005260:Female; D006801:Humans; D006990:Hypnosis; D007092:Imagination; D010147:Pain Measurement; D011603:Psychophysiology; D012064:Relaxation Therapy; D012803:Sick Role