title: Clinician activism and ethical restraints in providing treatment: preventive as opposed to reconstructive approaches.
abstract: There is seldom controversy when faced with treatment decisions for a child born with a birth defect. Occasionally, the situation arises in which a decision to withhold treatment must be made. Under most circumstances the responsibility for making such decisions rests with the child's parents or guardians, since it is generally felt that these individuals are the best advocates for the child's best interests. In order to make such difficult decisions, the parents are dependent upon the guidance and counseling of health professionals, especially the physicians most closely involved in each case. The ultimate decisions made by parents are dependent upon open and unambiguous communication with their children's clinicians as well as open communications among the caregivers themselves. The role of the clinician as an advocate for treatment and nontreatment of children is dependent upon clear unbiased communication and the desire to do what is in the best interest for each patient.
authors.affiliation: Department of Medical Genetics, Children's National Medical Center, Washington, DC 20010.
authors.forename: H M
authors.initials: HM
authors.lastname: Saal
mesh_terms: D000013:Congenital Abnormalities; D003376:Counseling; D003657:Decision Making; D030881:Disclosure; D004992:Ethics, Medical; D005260:Female; D030342:Genetic Diseases, Inborn; D006801:Humans; D007231:Infant, Newborn; D007258:Informed Consent; D008297:Male; D033282:Parental Consent; D010344:Patient Advocacy; D010347:Patient Care Planning; D018579:Patient Selection; D010817:Physician-Patient Relations; D028761:Withholding Treatment