title: Financial and time costs to parents of severely disabled children.
abstract: This paper considers the financial burden of parents caring for severely disabled children. A model to predict parents' out-of-pocket expenses and caregiving time demands is described. Discriminant analysis correctly classified high and low group membership for out-of-pocket expenses and caregiving time at 72 percent and 77 percent, respectively. Expected rates were 50 percent. Time spent caregiving was the best predictor for out-of-pocket expenses, and out-of-pocket expenses was the best predictor of caregiving time. A need-based approach for the distribution of resources that recognizes and adjusts for caregiving time and out-of-pocket costs is recommended.
authors.affiliation: Division of Human Development and Nutrition, School of Public Health, University of Minnesota 55455.
authors.forename: B
authors.initials: B
authors.lastname: Leonard
authors.forename: J D
authors.initials: JD
authors.lastname: Brust
authors.forename: J J
authors.initials: JJ
authors.lastname: Sapienza
mesh_terms: D000293:Adolescent; D017028:Caregivers / Q000145:classification / Q000191:economics / Q000706:statistics & numerical data*; D002648:Child; D003365:Costs and Cost Analysis; D006233:Persons with Disabilities; D005382:Financing, Personal / Q000706:statistics & numerical data*; D005102:Health Expenditures / Q000706:statistics & numerical data*; D006801:Humans; D007182:Income; D007348:Insurance, Health; D008910:Minnesota; D010290:Parents; D011632:Public Assistance; D013997:Time Factors