The role of parent stress and coping and family functioning in parent and child adjustment to Duchenne muscular dystrophy.
This study found 57% of parents of 35 children with Duchenne Muscular Dystrophy (4 to 14 years of age) to have self-reported poor psychological adjustment. The hypothesized mediational variables of parent appraisal of stress, relative use of palliative coping methods, and level of family conflict accounted for 58% of the variance in general distress, 50% in depressive symptoms, and 31% in anxiety symptoms. In terms of parent-reported child adjustment, 89% of the children were classified by parent report as having a behavior problem pattern. The internalizing profile pattern was most frequent (37%). The parent mediational variables accounted for 26% of the variance in parent-reported internalizing behavior problems and 29% in externalizing behavior problems.
Thompson
R J
RJ
Duke University Medical Center, Durham, NC 27710.
Zeman
J L
JL
Fanurik
D
D
Sirotkin-Roses
M
M
D000223:Adaptation, Psychological; D000293:Adolescent; D002648:Child; D002653:Child Behavior Disorders / Q000523:psychology; D002675:Child, Preschool; D005190:Family / Q000523:psychology; D005260:Female; D006701:Home Nursing / Q000523:psychology; D006801:Humans; D007389:Internal-External Control; D008297:Male; D009136:Muscular Dystrophies / Q000523:psychology*; D010290:Parents / Q000523:psychology*; D010552:Personality Assessment / Q000706:statistics & numerical data; D010553:Personality Development; D011594:Psychometrics; D012803:Sick Role; D012917:Social Adjustment; D013315:Stress, Psychological / Q000150:complications*