title: Social and demographic characteristics of patients admitted to a palliative care unit.
abstract: In this retrospective study we reviewed the charts of 169 consecutive admissions to the Palliative Care Unit, Edmonton General Hospital. Demographic and social characteristics of patients were assessed in order to determine the likelihood that the patients could be managed at home according to currently available services. The mean age of the population was 65 +/- 12 years, 97 (57%) were women, they had a variety of cancers with major prevalence of the most frequent adult tumors, and 72% of patients were coming from acute care hospitals. Each patient had an average of 2.7 +/- 1.8 children (median = 3), a mean of 0.18 +/- 0.6 dependents (median = 0), a mean of 1 +/- 0.9 support persons at home (median = 1), and a mean of 2.6 +/- 1 support persons outside the household (median = 2). Of a total of 119 main caregivers who lived in the same household as the patient, 69 (58%) were not able to take care of the patient. Only 27 patients (16%) considered that there were major financial problems, and all 169 patients had universal health care available (95 patients had additional private health care coverage). Of 125 patients who were asked where they preferred to die, 112 (90%) stated that they did not want to die at home. Our data suggest that the lack of family support and lack of intensive home care services are the main obstacles to home care of terminally ill cancer patients in our province. Home care services as currently available are not able to care for a large number of patients with terminal cancer. More prospective research into this subject is badly needed.
authors.affiliation: Palliative Care Program, Edmonton General Hospital, Alberta, Canada.
authors.forename: E
authors.initials: E
authors.lastname: Bruera
authors.forename: N
authors.initials: N
authors.lastname: Kuehn
authors.forename: B
authors.initials: B
authors.lastname: Emery
authors.forename: K
authors.initials: K
authors.lastname: Macmillan
authors.forename: J
authors.initials: J
authors.lastname: Hanson
mesh_terms: D000368:Aged; D005069:Evaluation Studies as Topic; D005191:Family Characteristics; D005260:Female; D006701:Home Nursing; D006738:Hospices; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology / Q000628:therapy*; D010166:Palliative Care / Q000379:methods*; D012189:Retrospective Studies; D012944:Social Support