Legal aspects of genetic information.
The federally funded Human Genome Initiative will lead to the development of new capabilities to learn about an individual's genetic status. Legal issues are raised concerning patients' and other parties' access to that information. This article discusses the effect of existing statutes and case law on three pivotal questions: To what sort of information are people entitled? What control should people have over their genetic information? Do people have a right to refuse genetic information? The article emphasizes that the law protects a patient's right to obtain or refuse genetic information about oneself, as well as the right to control the dissemination of that information to others.
Andrews
L B
LB
Center for Clinical Medical Ethics, University of Chicago, Illinois.
D003219:Confidentiality / Q000331:legislation & jurisprudence; D030561:Databases, Nucleic Acid; D030881:Disclosure; D004992:Ethics, Medical; D005817:Genetic Counseling / Q000331:legislation & jurisprudence; D030342:Genetic Diseases, Inborn; D030661:Genetic Privacy; D005820:Genetic Testing; D016045:Human Genome Project; D006801:Humans; D035846:Law Enforcement; D014342:Truth Disclosure