title: [What do parents of patients with cystic fibrosis know about their children's disease? Assessment of knowledge using a questionnaire].
abstract: A standardized questionnaire was used to assess the knowledge about cystic fibrosis (CF) in 20 parents of our patients with CF. 15 questions about genetics, symptoms and treatment were asked, with each item scored as correct or incorrect. Parents correctly answered an average of 9.5 of the 15 questions. The knowledge test demonstrated good internal consistency (alpha = 0.77). An examination of separate knowledge domains indicated that parents were almost equally knowledged about treatment (M = 63% of the items correct) and symptoms (M = 62%) but less about genetics and reproduction (M = 53%). Internal consistency however amounted to alpha = 0.34 in treatment, alpha = 0.45 in symptoms and alpha = 0.67 in genetics. This study showed that knowledge of disease in parents of our CF-patients was generally good. However there were same deficits in the field of treatment.
authors.affiliation: Kinderabteilung, Landeskrankenanstalten Salzburg.
authors.forename: J
authors.initials: J
authors.lastname: Riedler
authors.forename: B
authors.initials: B
authors.lastname: Grabherr
mesh_terms: D002648:Child; D003550:Cystic Fibrosis / Q000175:diagnosis* / Q000235:genetics / Q000628:therapy; D006801:Humans; D010290:Parents / Q000193:education*; D010353:Patient Education as Topic; D011379:Prognosis; D011795:Surveys and Questionnaires
vernacular_title: Was wissen die Eltern von Patienten mit zystischer Fibrose über die Krankheit ihrer Kinder? Wissensstanderhebung mittels Fragebogens.