title: Education and attitudes in families with adult polycystic kidney disease.
abstract: The availability of methods for early accurate identification of individuals at risk of developing adult polycystic kidney disease (ADPKD) has raised a number of important clinical problems. As part of a project on clinical and genetic aspects of ADPKD, we have assessed the knowledge and attitudes of patients and their families. Most had a poor knowledge of the condition and its implications. Despite this, many were in favour of early, including antenatal, diagnosis. A videotape was therefore introduced as part of an educational programme to improve patients' knowledge. This resulted in a marked improvement in understanding of the condition. Although a significant number still wished to consider early diagnosis in their offspring, very few would consider terminating an affected pregnancy.
authors.affiliation: Department of Medicine, Royal Infirmary of Edinburgh, UK.
authors.forename: A M
authors.initials: AM
authors.lastname: Macnicol
authors.forename: A F
authors.initials: AF
authors.lastname: Wright
authors.forename: M L
authors.initials: ML
authors.lastname: Watson
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D001294:Attitude to Health; D005260:Female; D005817:Genetic Counseling; D006801:Humans; D008297:Male; D008875:Middle Aged; D010353:Patient Education as Topic; D007690:Polycystic Kidney Diseases / Q000175:diagnosis / Q000235:genetics* / Q000523:psychology; D011247:Pregnancy; D011296:Prenatal Diagnosis; D012606:Scotland