title: [Function and structure of families with an epileptic child].
abstract: Although the impact of psycho-social factors on the individual patient with epilepsy has been widely investigated, the influence of the illness on the family as a whole is still underestimated. By means of the Family Assessment Measure (FAM III), a well-validated instrument, we investigated which measurable influence the epilepsy of one child had on the functioning of the families. Data from a group of 72 families with a child suffering from epilepsy (EG), but without any other handicap were analysed and compared with those of 75 families with a child with severe mental retardation (SMG) and 76 control families (CG). Data were gathered through home visits. Only complete families were studied. Results showed that the EG was similar to the SMG in all 3 scales of FAM III, but differed significantly from the CG. In 26% of the families in EG and in 19% of the SMG clear signs of family malfunctioning were found, as compared with 6.5% of the CG. Family disfunctioning in EG was of a greater variety that in SMG. We found that within the EG the type of seizures (41 patients with generalized tonic clonic fits, 10 with complex partial seizures and 21 with absences) did not have any impact on the results. In addition, neither the duration of the illness nor the absolute length of seizure-free periods seemed to matter. Only families who had the subjective feeling that their children were still suffering from epilepsy showed significantly higher rates of family malfunctioning. Summarizing, we found that epilepsy in a child can have a severe impact, not only on his individual life and on the mother-child relationship, but on the functioning of his family as the whole. This fact should be taken into account in the treatment of these children and should influence family counselling, as well.
authors.affiliation: Heilpädagogische Station des Landes Niederösterreich.
authors.forename: E
authors.initials: E
authors.lastname: Tatzer
authors.forename: M T
authors.initials: MT
authors.lastname: Schubert
authors.forename: C
authors.initials: C
authors.lastname: Groh
authors.forename: W
authors.initials: W
authors.lastname: Leixnering
authors.forename: W
authors.initials: W
authors.lastname: Feucht
authors.forename: A
authors.initials: A
authors.lastname: Lischka
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D002648:Child; D004827:Epilepsy / Q000523:psychology*; D004832:Epilepsy, Absence / Q000523:psychology; D004833:Epilepsy, Temporal Lobe / Q000523:psychology; D004830:Epilepsy, Tonic-Clonic / Q000523:psychology; D005190:Family; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D010556:Personality Tests; D012803:Sick Role
vernacular_title: Funktion und Struktur von Familien mit einem epilepsiekranken Kind.