The emotional status of cystic fibrosis patients as evaluated by hospital and family, and the correlation of the daily treatment load to these two evaluation.
The emotional status of 48 CF patients, without chronic pseudomonas aeruginosa infection, and all treated at the same center since diagnosis was evaluated by family and by hospital staff. Both types of emotional status evaluations were correlated to the daily treatment load by a non-parametric analysis. The correlations were opposite as follows: According to the hospital staff: the greater the daily treatment load, the more burdened the child. According to the families: the greater the daily treatment load, the less burdened the child. Our project is part of a big inter-Nordic project on living conditions of families with children conducted by the Nordic School of Public Health in Sweden, and our results are preliminary results, to be published, on the relationship between the emotional status and the clinical status of cystic fibrosis patients in Denmark. A traditional hypothesis about chronically ill children says: chronically ill children are disabled emotionally by the disease as well as by treatment. The purpose of this study was to test this hypothesis in the case of cystic fibrosis.
Jørring
N T
NT
Danish CF-Center, Department of Pediatrics, Rigshospitalet, Copenhagen.
Torsson
A
A
D002648:Child; D003550:Cystic Fibrosis / Q000523:psychology* / Q000628:therapy; D004644:Emotions; D005069:Evaluation Studies as Topic; D005190:Family; D006801:Humans; D010564:Personnel, Hospital