The experience of black parents/caretakers with the births and care of a child with profound congenital defects.
The reaction of Black families to the birth and care of a baby with profound congenital defects was researched using twenty case studies. It was found that the families went through stages of the grieving process, that they shifted from the Western/Christian viewpoint to the traditional viewpoint in their struggle to cope and that they find the existing services grossly inadequate.
Mabaso
M S
MS
Uys
L R
LR
D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001741:Black or African American / Q000523:psychology*; D001294:Attitude to Health; D044383:Black People; D002662:Child Health Services / Q000592:standards; D002675:Child, Preschool; D000013:Congenital Abnormalities / Q000451:nursing*; D006117:Grief; D006801:Humans; D007224:Infant Care; D007231:Infant, Newborn; D008875:Middle Aged; D009034:Mother-Child Relations; D010290:Parents / Q000523:psychology*; D012944:Social Support; D013019:South Africa