title: Information and service needs among active and former family caregivers of persons with Alzheimer's disease.
abstract: This study interprets results of a needs assessment completed by active and former caregivers of relatives with Alzheimer's disease (AD). Self-administered questionnaires yielded data about information and service needs at the time of diagnosis and at the time of the survey. Implications point to the need for high-quality educational material throughout the caregiving career, improved training for health professionals about AD, and an important role for former caregivers as resources to disseminate knowledge about AD to still-active caregivers and others in their own communities.
authors.affiliation: Human Services Development Institute, Edmund S. Muskie Institute of Public Affairs, University of Southern Maine, Portland 04103.
authors.forename: R H
authors.initials: RH
authors.lastname: Fortinsky
authors.forename: T J
authors.initials: TJ
authors.lastname: Hathaway
mesh_terms: D000328:Adult; D000368:Aged; D000544:Alzheimer Disease; D003430:Cross-Sectional Studies; D005260:Female; D006301:Health Services Needs and Demand; D006701:Home Nursing; D006801:Humans; D007255:Information Services; D008297:Male; D008875:Middle Aged; D010817:Physician-Patient Relations; D012189:Retrospective Studies