title: AIDS and children: some of the issues in haemophilia care and how to address them.
abstract: Haemophilia is a life-long, life-threatening inherited condition for which there is treatment but no cure. It affects not only the patient but all members of the family. This paper focuses on how AIDS/HIV, which shares these characteristics with haemophilia, has affected children with HIV, their siblings, those who have remained antibody negative and those with HIV infected fathers. The impact of haemophilia and AIDS on the family is considered and the ripple effect of AIDS on health care staff is addressed.
authors.affiliation: Haemophilia Centre, Katherine Dormandy Haemophilia Centre and Haemostasis Unit, Royal Free Hospital, London, United Kingdom.
authors.forename: R
authors.initials: R
authors.lastname: Miller
authors.forename: E
authors.initials: E
authors.lastname: Goldman
authors.forename: R
authors.initials: R
authors.lastname: Bor
authors.forename: P
authors.initials: P
authors.lastname: Kernoff
mesh_terms: D000163:Acquired Immunodeficiency Syndrome / Q000523:psychology*; D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D005190:Family / Q000523:psychology*; D006467:Hemophilia A / Q000523:psychology*; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D010290:Parents / Q000523:psychology; D012801:Sibling Relations