title: Impact of juvenile arthritis on families. An educational assessment.
abstract: State of the art patient education programs have as their goals changes in behaviors, coping styles, health status, and/or costs. The accomplishment of these goals often involves not only the patient but also his or her whole family. This is especially true if the patient is a child. Based on this premise, we undertook an educational needs assessment of 50 children with juvenile arthritis (JA) and their families. Through utilization of a grounded theory methodology, open-ended questionnaires were completed by JA children, their parents, and their siblings. The resulting analysis suggests (1) the need for family-based education, (2) differing needs of various family members, and (3) several hypotheses for further study.
authors.forename: L
authors.initials: L
authors.lastname: Konkol
authors.forename: J
authors.initials: J
authors.lastname: Lineberry
authors.forename: J
authors.initials: J
authors.lastname: Gottlieb
authors.forename: P E
authors.initials: PE
authors.lastname: Shelby
authors.forename: J J
authors.initials: JJ
authors.lastname: Miller
authors.forename: K
authors.initials: K
authors.lastname: Lorig
mesh_terms: D000293:Adolescent; D000328:Adult; D001171:Arthritis, Juvenile / Q000451:nursing / Q000503:physiopathology / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D009730:Nursing Assessment; D010353:Patient Education as Topic / Q000592:standards*; D011795:Surveys and Questionnaires