Parental opinions on treatment decisions for myelomeningocele infants: a descriptive study.
Parents of MMC patients have strong attitudes and beliefs on specific issues. They believed in the need to be involved in decisions regarding their children and felt strongly that their role was central and was important as that of the physician. They believed also in the importance of providing both medical and nutritional care to handicapped infants with a minimum of government intrusion.
Jacobs
R A
RA
Department of Pediatrics, USC School of Medicine, Children's Hospital of Los Angeles 90027.
Negrete
V
V
Johnson
M
M
Korsch
B M
BM
D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D002648:Child; D002675:Child, Preschool; D006801:Humans; D007231:Infant, Newborn; D007258:Informed Consent / Q000331:legislation & jurisprudence; D007872:Legal Guardians; D015141:Los Angeles; D008591:Meningomyelocele / Q000601:surgery*; D010290:Parents / Q000523:psychology*; D010342:Patient Acceptance of Health Care