Registration procedures and exchange of data in the Sjögren's syndrome research team with special reference to the oral component.
The management of patients with Sjögren's syndrome and research on diagnostic procedures and treatment modalities is to a great extent a co-operation procedure between specialties such as rheumatology, ophthalmology and oral medicine. Efficient registration and handling of data between those disciplines is of the utmost importance for the evaluation of diagnostic criteria and therapeutic measures. Routines for the handling of pertinent data between an EDB center and different clinics are suggested in this article. For the efficient registration a package of forms is also demonstrated. This package contains one main chart and separate charts for registration of detailed information from each discipline involved.
Axéll
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Department of Oral Surgery and Oral Medicine, Faculty of Dentistry, Lund University, Malmö, Sweden.
D005128:Eye Diseases / Q000175:diagnosis; D006801:Humans; D008498:Medical Record Linkage; D008499:Medical Records; D009059:Mouth Diseases / Q000175:diagnosis*; D015337:Multicenter Studies as Topic; D012216:Rheumatic Diseases / Q000175:diagnosis; D012859:Sjogren's Syndrome / Q000175:diagnosis*