title: Here are (almost all) the data: the evolution of the US Renal Data System.
abstract: The US Renal Data System was established in May 1988 by implementation of a contract with the Urban Institute in Washington, DC, by the National Institute of Diabetes and Digestive and Kidney Diseases. Over the last 16 years, since implementation of the Medicare End-Stage Renal Disease Program, the United States has lacked a comprehensive renal data system analogous to those available in Europe, Canada, and Australia and New Zealand. This essay reviews the history of the development of end-stage renal disease data collection activities and registries in the United States and discusses some of the problems and lessons learned, together with the anticipated objectives of the US Renal Data System.
authors.affiliation: Northwest Kidney Center, seattle, WA 98122.
authors.forename: C R
authors.initials: CR
authors.lastname: Blagg
authors.forename: R R
authors.initials: RR
authors.lastname: Bovbjerg
authors.forename: S C
authors.initials: SC
authors.lastname: FitzSimmons
mesh_terms: D014487:Centers for Medicare and Medicaid Services, U.S.; D005060:Europe; D006801:Humans; D007256:Information Systems; D007676:Kidney Failure, Chronic; D007883:Legislation, Medical; D006278:Medicare; D009316:National Institutes of Health (U.S.); D012042:Registries; D014481:United States