Adrenoleukodystrophy: a nursing challenge.
Adrenoleukodystrophy has only recently been recognized as a disorder unique to children. Its debilitating sequelae have a profound impact on the physical, psychosocial, and cognitive development of children. Superimposed on coping with the crisis of illness is the stressor of hospitalization, a common experience for children with adrenoleukodystrophy. This article focuses on nursing's contribution to facilitating children's adaptation to the stressors of a progressive disorder, adrenoleukodystrophy, and hospitalization. Utilizing a developmental approach, the psychosocial needs of these children are addressed in a format based on the nursing process.
Douglas
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D000326:Adrenoleukodystrophy / Q000451:nursing* / Q000523:psychology; D002648:Child; D002675:Child, Preschool; D002908:Chronic Disease; D002549:Diffuse Cerebral Sclerosis of Schilder / Q000451:nursing*; D006801:Humans; D008297:Male; D009730:Nursing Assessment; D009733:Nursing Diagnosis; D010343:Patient Admission; D012917:Social Adjustment