Baby Doe, Congress and the states: challenging the federal treatment standard for impaired infants.
In its amendments to the Child Abuse Prevention and Treatment Act, Congress set forth a strict standard for treatment of impaired infants. The statute, shaped by right-to-life groups and certain medical organizations, calls for aggressive treatment in virtually all cases, regardless of the degree of suffering imposed and the burdens and risks involved. The federal rule evidences deep distrust of parental decisionmaking, relegating most parents to a nonparticipatory bystander role. Congress did not make its rule binding on the states. Rather, it conditioned the receipt of federal funds upon incorporation of the rule into each state's law. Most states have accepted the condition, largely through rulemaking by state child abuse agencies. This article challenges the authority of state administrators to promulgate these rules, and argues that state constitutions, little mentioned in the Baby Doe debate thus far, may prohibit many states from adopting the federal standard. Ordering medical interventions that perpetuate extreme conditions of physical and mental devastation, subjecting infants to grave suffering for uncertain benefits, and depriving parents of virtually all decisionmaking power violates the norm of governments constitutionally committed to individual liberty, human dignity and family autonomy. A constitutionally sound approach to this issue would permit careful, ethical deliberation, attention to the individual circumstances of each infant Doe and a reasonable degree of parental control.
New York Law School.
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Newman
D002649:Child Abuse / Q000331:legislation & jurisprudence*; D003219:Confidentiality / Q000331:legislation & jurisprudence; D000013:Congenital Abnormalities / Q000628:therapy*; D028741:Ethics Committees, Clinical; D028744:Ethics Committees, Research; D004992:Ethics, Medical; D005190:Family; D035082:Federal Government; D033161:Government Regulation; D006806:Human Rights / Q000331:legislation & jurisprudence; D006801:Humans; D007230:Infant, Low Birth Weight; D007231:Infant, Newborn; D007232:Infant, Newborn, Diseases / Q000628:therapy*; D033222:Judicial Role; D010344:Patient Advocacy / Q000331:legislation & jurisprudence*; D011050:Policy Making; D018570:Risk Assessment; D013315:Stress, Psychological; D035521:Supreme Court Decisions; D014481:United States; D028761:Withholding Treatment