Guidelines for organizing a comprehensive neurofibromatosis program.
As neurofibromatosis receives increasing amounts of attention in both clinical and research terms, there is an even greater need to organize comprehensive neurofibromatosis programs that will capitalize on the advances being made. Based on the experience of the Baylor NF Program, a model for establishing and operating comprehensive neurofibromatosis programs is presented and discussed.
Riccardi
V M
VM
Department of Medicine, Baylor College of Medicine, Houston, Tex.
D003191:Comprehensive Health Care / Q000458:organization & administration*; D006801:Humans; D009456:Neurofibromatosis 1 / Q000175:diagnosis / Q000523:psychology