The genetics of secrecy in adoption, artificial insemination, and in vitro fertilization.
In light of the significant role that heredity plays in many disease processes, statutes requiring strict secrecy with regard to medical records in cases of adoption, artificial insemination and in vitro fertilization should be reassessed. In adoption cases, attitudes concerning the adoptee's ancestry have progressed over the century, but adoptees still are unable to access their records. The problem of inaccessibility is also apparent in medical genetics clinics where valuable genetic information, necessary for an accurate diagnosis, is unavailable to the clinic, the adoptive parents, and the birth parents. A uniform law which responds to these interests and problems should be promulgated. This Note discusses the need for better access to and availability of medical records. The Note proposes a Uniform Act and suggests that, at a minimum, it include a scheme for regulating the donation of genetic material, strong record-keeping requirements with respect to family histories and pedigrees, and finally, an open access provision for certain information for both children and parents.
Lamport
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D000300:Adoption / Q000331:legislation & jurisprudence*; D005307:Fertilization in Vitro; D005817:Genetic Counseling; D030342:Genetic Diseases, Inborn; D006801:Humans; D007315:Insemination, Artificial; D008499:Medical Records; D018587:Oocyte Donation; D013094:Spermatozoa; D014342:Truth Disclosure