title: Collecting cancer registry data with a Cancer Patient Questionnaire.
abstract: Tumor registries provide a valuable source of treatment, survival, and epidemiologic data but have been faulted for incomplete and insufficient collection of data. An eight page, 38-item Cancer Patient Questionnaire (CPQ) was developed to collect more extensive information for the tumor registry. The CPQ identified significantly more patients with a family history of cancer than had previously been detected by chart review by the tumor registrar. The CPQ agreed with data collected by the tumor registry in 96% of cases for place of birth, 84% of cases for occupational history, 91% of cases for tobacco use, and 88% of cases for number of pregnancies or live births. The Cancer Patient Questionnaire is complete and easy to use and may replace the chart review in the collection of these data.
authors.affiliation: Department of Medicine, University of Missouri-Columbia School of Medicine 65212.
authors.forename: C M
authors.initials: CM
authors.lastname: Morrison
authors.forename: Q S
authors.initials: QS
authors.lastname: Ringenberg
authors.forename: V
authors.initials: V
authors.lastname: Gerhard
authors.forename: S
authors.initials: S
authors.lastname: Anderson
authors.forename: D C
authors.initials: DC
authors.lastname: Doll
authors.forename: J W
authors.initials: JW
authors.lastname: Yarbro
mesh_terms: D003625:Data Collection / Q000379:methods*; D008923:Missouri; D009369:Neoplasms / Q000453:epidemiology*; D012042:Registries; D011795:Surveys and Questionnaires