title: Disclosure of psychosocial concerns of young adults with advanced cystic fibrosis (CF) by a nurse home visiting program.
abstract: Twelve patients with advanced cystic fibrosis were enrolled over a 36 month interval in a trial to assess the effect of nocturnal home oxygen therapy. As part of this study, there were repeated home visits by the nurse. Immediately following a visit, the nurse encoded all spontaneous expressions of concern into three general categories: CF management, growth and development and family relations. During the first 6 months, the concerns focused on CF management and over the subsequent year were followed by concerns related to growth and development and, finally to family interactions. This pattern suggests a sequence to the types of interventions accepted by this population.
authors: Respiratory Medicine, McGill University, Montreal Children's Hospital Research Institute, Quebec, Canada.
authors: S
authors: S
authors: Brissette
authors: R
authors: R
authors: Zinman
authors: M
authors: M
authors: Reidy
mesh_terms: D000293:Adolescent; D000328:Adult; D003152:Community Health Nursing; D003550:Cystic Fibrosis / Q000451:nursing / Q000523:psychology*; D005190:Family; D005260:Female; D006801:Humans; D008297:Male; D009720:Nurse Clinicians; D010102:Oxygen Inhalation Therapy; D012650:Self Disclosure