title: Unmet needs of persons with cancer in Pennsylvania during the period of terminal care.
abstract: A stratified random sample of recent cancer deaths was drawn from the Pennsylvania death registry, and 433 family members or close friends were interviewed concerning unmet needs during the last month of life. It was estimated that 72% of persons who died of cancer in Pennsylvania experienced at least one unmet service need during this period. The most frequently reported was help with activities of daily living, estimated at 42% of cancer deaths, involving over 11,000 persons each year in the state. There were significantly more unmet needs during the terminal period, compared with just after diagnosis, in activities of daily living, obtaining health care, transportation, and problems with medical staff. Our findings indicate a need to increase a broad range of support programs during the terminal period, especially of home-care services.
authors.affiliation: Pennsylvania State University College of Medicine, Department of Behavioral Science, Hershey 17033.
authors.forename: P S
authors.initials: PS
authors.lastname: Houts
authors.forename: J M
authors.initials: JM
authors.lastname: Yasko
authors.forename: H A
authors.initials: HA
authors.lastname: Harvey
authors.forename: S B
authors.initials: SB
authors.lastname: Kahn
authors.forename: A J
authors.initials: AJ
authors.lastname: Hartz
authors.forename: J F
authors.initials: JF
authors.lastname: Hermann
authors.forename: G W
authors.initials: GW
authors.lastname: Schelzel
authors.forename: M J
authors.initials: MJ
authors.lastname: Bartholomew
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D005190:Family; D005260:Female; D006301:Health Services Needs and Demand; D006302:Health Services Research; D006699:Home Care Services; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology* / Q000628:therapy; D010414:Pennsylvania; D013727:Terminal Care