A group for parents of children with fatal genetic illnesses.
Parents whose children have progressive genetic disorders, such as Tay-Sachs, are confronted with a myriad of painful and compelling issues. This paper describes a long-term, open-ended group set up to allow parents of such children to work together on mutual concerns. The process of collaboration, the evolving structure of the group, and the challenges of working with this special population are explored.
Mack
S A
SA
Children's Hospital, Boston.
Berman
L C
LC
D000223:Adaptation, Psychological; D000328:Adult; D002648:Child; D005260:Female; D006126:Group Processes; D006127:Group Structure; D006701:Home Nursing / Q000523:psychology; D006801:Humans; D007857:Leadership; D008297:Male; D010290:Parents / Q000523:psychology*; D012657:Self-Help Groups; D013661:Tay-Sachs Disease / Q000523:psychology*