The care of our children in everyday life.
The life within a family of a Rett syndrome child is usually in a constant state of changing emotion due to the overwhelming responsibility of caring for the afflicted child and meeting the needs of the remaining family. Personal philosophy and care techniques are related to give insight into one family's mixed blessing of having a Rett syndrome daughter and their struggle to maintain some normalcy within the seemingly incomprehensible malady. When families share with each other and with those who provide medical, educational and therapeutic care for their daughters, progress is made through mutual understanding and consideration for all persons involved, not the least of whom is the Rett syndrome child and her family.
Smith
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International Rett Syndrome Association, Fort Washington, MD 20744.
D000203:Activities of Daily Living; D000293:Adolescent; D001294:Attitude to Health; D001927:Brain Diseases / Q000235:genetics / Q000534:rehabilitation*; D005190:Family; D005260:Female; D006801:Humans; D008607:Intellectual Disability / Q000235:genetics / Q000534:rehabilitation*; D013577:Syndrome