title: The social management of children with spina bifida who are unlikely to survive.
abstract: This study indicates: A need for education in the labour ward and in the initial handling of the family. A need to defend the family from initial inadequate advice. The child's deformity and death should be handled in the context of the parents' own family culture.
mesh_terms: D001293:Attitude to Death; D003376:Counseling / Q000379:methods; D005190:Family; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D007258:Informed Consent; D008297:Male; D008505:Medical Staff, Hospital / Q000193:education; D009741:Nursing Staff, Hospital / Q000193:education; D011247:Pregnancy; D016136:Spina Bifida Occulta / Q000523:psychology*