[Home care for the hemophilic child: experience of 4 training courses for the parents].
Much has already been written about training courses for home care of the hemophiliac held both in Italy and abroad. The advantages of home care are unquestionable. On one hand, the disorder becomes less hospital-dependent, and on the ofter, trough greater partecipation both the infusor and family become more responsible and competent on dealing with it. Hemophilia is a disease which puts the heaving burden on the pediatrics years. A specialized pediatric center is undoubtedly ideal for providing "global" assistance to the hemophilic child and his family so as to prevent any physical consequence of the disorder. There is a natural setting for training courses for home care for parents where they receive proper instruction with respect to problems that are often solely pediatric. The purpose of the course is not just to teach how to reconstitute and infuse freeze-dried concentrate, a practice which is, in itself, fairly easy, but also to give the parents through explanation, and a chance to meet with other parents to exchange ideas and experience.
D000328:Adult; D001803:Blood Transfusion; D002648:Child; D003479:Curriculum; D005069:Evaluation Studies as Topic; D006467:Hemophilia A / Q000628:therapy*; D006701:Home Nursing / Q000193:education*; D006801:Humans; D008297:Male; D010290:Parents
Trattamento domiciliare del bambino emofilico: esperienza di quattro corsi di addestramento per i genitori.