The Danish Polyposis Register. Description of the methods of detection and evaluation of completeness.
A manual Danish register of patients with familial polyposis coli and their family members was established in 1971. The methods of collection of propositi, preparation of pedigrees, collection of call-up cases, and the organization of the register are described. A country-wide prophylactic proctosigmoidoscopic examination of first-degree relatives, aged 10 to 59 years, resulted in the detection of 42 call-up cases and by December 1982, 319 cases of polyposis were registered in 94 families. An evaluation of the number of collected propositi and call-up cases shows almost complete registration.
D000293:Adolescent; D000328:Adult; D002648:Child; D003111:Colonic Polyps / Q000453:epidemiology / Q000235:genetics* / Q000517:prevention & control; D003718:Denmark; D005260:Female; D006801:Humans; D008297:Male; D008499:Medical Records; D008875:Middle Aged; D012306:Risk