[Concept for the total care of families of children with leukemia and tumors based on conversations with the parents].
In order to create a foundation for prophylactic and therapeutic measures the problems of children with leucaemia and other malignancies and of their families were assessed in detail with parents of these children in single or group discussions. The necessity for integrated therapy including families of children with leucaemia or tumours became apparent. Care should include extensive talks with all family members and also with teachers of patients and of healthy siblings, the use of aids such a painting or puppet theatre for recognition of problems and needs, particularly in small children, home visits to explore problems of health siblings, involvement of social workers, aftercare for the whole family after the death of a child, and, finally the help for overcoming problems of the treating team. Care to such an extent has been found to be necessary and requires an increase in posts in oncological units. Lack of time for the patients as human beings is unacceptable even from an economical point of view. A psychotherapeutically versed medical doctor or a clinical psychologist and a social worker should be permanent members of any oncological team.
D000223:Adaptation, Psychological; D000293:Adolescent; D001293:Attitude to Death; D002648:Child; D002675:Child, Preschool; D003191:Comprehensive Health Care / Q000379:methods*; D005196:Family Therapy / Q000379:methods*; D005260:Female; D006801:Humans; D007938:Leukemia / Q000523:psychology / Q000628:therapy*; D008297:Male; D009369:Neoplasms / Q000523:psychology / Q000628:therapy*; D010287:Parent-Child Relations; D011368:Professional-Family Relations; D012801:Sibling Relations; D012917:Social Adjustment
Konzept zur Ganzheitsbetreuung von Familien leukämie- und tumour- kranker Kinder, basierend auf Gesprächen mit den Eltern