title: ["Medical research confidentiality" could promote research and protect personal rights--conquering data protection related research deficits in Germany].
abstract: The workgroup of the German Medical Societies (AWMF) has asked for the introduction of a law ruling "Medical Research Secrets". The aim is to reduce the obstacles put on important medical research, especially in epidemiology, mainly caused by the legal protection of privacy of personal data. This aim could be reached by a legal protection of medical research data in adjunction to the legal status of the professional secrecy at present effective for physicians. The realization of the legal protection of specific research projects could be approved by local ethic-committees, they would bind the individual researchers to a closely protected secrecy and so enable the transfer of personal data from different sources without the obstacles of the present legal protection of privacy data and the legal professional secrecy effective for physicians. This is of importance for the combination of research support for the gain of future patients and protection of personal privacy for patients of today and would mean a correction of an erroneous German development of a legally perfectionized mistrust of physicians involved in research. It will be shown, that cancer registers are necessary, but that present laws ruling cancer registers are hostile to research and will depreciate the research location Germany.
mesh_terms: D016494:Computer Security / Q000331:legislation & jurisprudence*; D003219:Confidentiality / Q000331:legislation & jurisprudence*; D005858:Germany; D006801:Humans; D007258:Informed Consent / Q000331:legislation & jurisprudence; D016347:Medical Records Systems, Computerized / Q000331:legislation & jurisprudence*; D012042:Registries; D012106:Research / Q000331:legislation & jurisprudence*
vernacular_title: Ein "Medizinisches Forschungsgeheimnis" könnte Forschung fördern und Persönlichkeitsrechte schützen--Zur Uberwindung datenschutzbedingter Forschungsmängel in Deutschland.