The effects of uncertainty in families with children who are chronically ill.
This study examined the experiences, stresses, support networks, and needs of four families with chronically ill children receiving home care. Chronic uncertainty appeared to be the major psychosocial stressor confronting each family. Parents experienced uncertainty when dealing with the child's illness, treatments, other family members, and healthcare professionals. Home care nurses had a great impact on minimizing the burden of uncertainty by providing consistent support and understanding, and normalizing the home environment.
Sharkey
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D000223:Adaptation, Psychological; D000328:Adult; D002648:Child; D002908:Chronic Disease / Q000451:nursing*; D003152:Community Health Nursing; D005190:Family / Q000523:psychology*; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D007231:Infant, Newborn; D008297:Male; D015404:Nursing Methodology Research; D012944:Social Support; D013315:Stress, Psychological / Q000451:nursing* / Q000523:psychology