title: Impact of childhood leukemia on family planning.
abstract: Clinical experiences have indicated that family planning is affected by childhood leukemia. To investigate this issue, 130 mothers and fathers of 68 families with a long-term disease-free survivor were studied using interviews and questionnaires concerning the effects of childhood cancer on family planning. In one third of the families, either one or both partners reported that their child's disease affected their reproductive planning in various ways. The most extreme variations included having completed the family before diagnosis but still having another child versus not having completed the family before diagnosis but refraining from further progeny. More than half of the affected families refrained from having further offspring, delineating psychological motives for their decision. For parents whose family planning is affected by their experiences with childhood leukemia, the decision-making process is an extra burden. Therefore we advocate that support for the parents of a child with cancer should include counseling on progeny, in which both genetic and psychological information should be provided.
authors.affiliation: Department of Child and Adolescent Psychiatry, Sophia Children's Hospital-Erasmus University, Rotterdam, The Netherlands.
authors.forename: J E
authors.initials: JE
authors.lastname: Van Dongen-Melman
authors.forename: A
authors.initials: A
authors.lastname: De Groot
authors.forename: K
authors.initials: K
authors.lastname: Hählen
authors.forename: F C
authors.initials: FC
authors.lastname: Verhulst
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D005193:Family Planning Services; D005260:Female; D006801:Humans; D007223:Infant; D007407:Interviews as Topic; D007938:Leukemia / Q000523:psychology*; D008223:Lymphoma / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D010290:Parents / Q000523:psychology; D011795:Surveys and Questionnaires