The social course of epilepsy: chronic illness as social experience in interior China.
Findings are reported from a collaborative research project on the experience of epilepsy and treatment among patients and family members in Shanxi and Ningxia Provinces in China. Family, marriage, financial and moral consequences of the social experience of epilepsy support the conceptualization of chronic illness as possessing a social course. Beyond traditional concern with stigma, application of concepts of delegitimation, sociosomatic processes, coping as resistance, contestation in the evaluation of efficacy and compliance, and the cultural ontology of suffering illustrate other ways that social theory is useful in research on chronic illness and disability.
Kleinman
A
A
Department of Social Medicine, Harvard University, Cambridge, MA, USA.
Wang
W Z
WZ
Li
S C
SC
Cheng
X M
XM
Dai
X Y
XY
Li
K T
KT
Kleinman
J
J
D000223:Adaptation, Psychological; D002681:China; D017281:Cost of Illness; D003431:Cross-Cultural Comparison; D003906:Developing Countries; D006233:Persons with Disabilities / Q000523:psychology; D004827:Epilepsy / Q000208:ethnology / Q000523:psychology* / Q000534:rehabilitation; D005190:Family / Q000523:psychology; D006801:Humans; D011788:Quality of Life; D012803:Sick Role; D012928:Social Desirability; D012944:Social Support; D012945:Social Values