title: Self-care burden in women with human immunodeficiency virus.
abstract: The authors of this descriptive study used Orem's Theory of Self-Care to assess perceived demand for or change in universal and health-deviation self-care activity and the degree of difficulty ascribed to meeting that demand. Perceived demand or change in self-care and difficulty in self-care were measured using the Self-Care Burden Scale (Oberst, Hughes, Chang & McCubbin, 1991) and a structured interview. A convenience sample of 10 English or Spanish-speaking women with HIV infection utilizing a city hospital's outpatient immunodeficiency clinic were recruited. Of the health deviation self-care items, home medical/nursing treatments, special diet, and obtaining resources were the most burdensome categories. Universal self-care tasks with the highest burden scores were caring for children, physical activity, and work.
authors.affiliation: Beth Israel Medical Center, New York, NY, USA.
authors.forename: C
authors.initials: C
authors.lastname: Anastasio
authors.forename: T
authors.initials: T
authors.lastname: McMahan
authors.forename: A
authors.initials: A
authors.lastname: Daniels
authors.forename: P K
authors.initials: PK
authors.lastname: Nicholas
authors.forename: A
authors.initials: A
authors.lastname: Paul-Simon
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D017281:Cost of Illness; D005260:Female; D015658:HIV Infections / Q000451:nursing* / Q000523:psychology; D006301:Health Services Needs and Demand; D006801:Humans; D008875:Middle Aged; D015404:Nursing Methodology Research; D009742:Nursing Theory; D012648:Self Care; D011795:Surveys and Questionnaires; D016387:Women's Health