title: Creating a community of caring for families with special needs.
abstract: When parents are faced with the realization that their child has a disability or chronic illness, life is significantly changed. There can be tremendous emotional and economic stress as families seek diagnosis and treatment and face a bewildering search for appropriate programs. Uncertainty about the future and frustration with the present often leave caregivers overwhelmed. For these fragile families, a philosophy of family-centered care in their community is important. Ideally, this seamless system should offer continuity of care from birth through the childhood years and bridge medical, educational, and social services. Only in this environment can we assure that we are saving not only the infant but also the family.
authors.affiliation: Any Baby Can, Inc., San Antonio, TX 78228, USA.
authors.forename: M
authors.initials: M
authors.lastname: Sokol
mesh_terms: D002648:Child; D002662:Child Health Services / Q000458:organization & administration*; D002908:Chronic Disease / Q000451:nursing*; D003152:Community Health Nursing / Q000458:organization & administration; D003266:Continuity of Patient Care; D004645:Empathy; D005190:Family / Q000523:psychology*; D006301:Health Services Needs and Demand; D006801:Humans; D007224:Infant Care / Q000458:organization & administration; D007231:Infant, Newborn; D018802:Patient-Centered Care / Q000458:organization & administration; D010687:Philosophy, Nursing; D012944:Social Support; D013315:Stress, Psychological / Q000451:nursing