Uncovering and managing denial during the research process.
This article describes experiences of geropsychiatric nurses examining the effectiveness of the Progressively Lowered Stress Threshold Model for caregivers of persons with Alzheimer's disease and related disorders, and briefly reviews the literature on coping and denial. This research project, and those of many other psychiatric nurses, is predicated on the expectation that subjects will be able to acknowledge and report to investigators their personal and intimate responses to the challenges and everyday experiences of caregiving. Clearly, the research findings will be most valid if subjects are completely open about all aspects of their experiences, no matter how painful; yet this is often an idealized expectation. Therefore, this article also explores the concerns of geropsychiatric nurse researchers attempting to balance sensitivity to the needs of subjects and the reliability and validity of the data.
Collins
J A
JA
Genesis Medical Center, Davenport, IA 52803, USA.
Crump
S
S
Buckwalter
K C
KC
Hall
G R
GR
Gerdner
L A
LA
Kudart
P
P
D000223:Adaptation, Psychological; D000368:Aged; D000544:Alzheimer Disease / Q000451:nursing*; D017028:Caregivers / Q000523:psychology*; D015400:Clinical Nursing Research / Q000379:methods* / Q000592:standards; D003625:Data Collection / Q000592:standards; D003717:Denial, Psychological; D006801:Humans; D008960:Models, Psychological