title: Parental perspectives related to decision-making and neonatal death.
abstract: With the advent of many new technologies, decision-making about the care of critically ill neonates represents one of the primary ethical arenas in health care today. Professionals and parents are forced to make decisions about when, how, and if critically ill neonates die. This qualitative study, based on interviews with a very small, convenience sample of parents, begins to explore the parental perspective about ethical decision-making regarding critically ill neonates by describing their personal experiences as they faced the reality or possibility of their babies' deaths.
authors.forename: P
authors.initials: P
authors.lastname: Schlomann
authors.forename: S
authors.initials: S
authors.lastname: Fister
mesh_terms: D001293:Attitude to Death; D016638:Critical Illness; D003657:Decision Making; D004993:Ethics, Nursing; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D008297:Male; D015404:Nursing Methodology Research; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research; D012106:Research; D028761:Withholding Treatment