title: Surgical reconstruction of patients with Crouzon's syndrome: a lifetime of needs.
abstract: Crouzon's Syndrome is an inherited craniofacial deformity. Unfortunately, like with many other complex disorders, there is no quick fix. Treatment consists of numerous surgeries over a long period of time. Nurses are crucial team members as they are best educated to balance the physical, psychosocial, and developmental needs of patients and families.
authors.forename: B
authors.initials: B
authors.lastname: Strohecker
mesh_terms: D000328:Adult; D003394:Craniofacial Dysostosis / Q000235:genetics / Q000523:psychology / Q000601:surgery*; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D008134:Long-Term Care