Family perceptions of living with Alzheimer's disease.
The purpose of this study was to identify the major themes that 38 multigenerational families emphasized in their conversations about living with Alzheimer's disease. Interviews were conducted with families that were providing home care in the early stages of the disease. Family perceptions were analyzed with the aid of a computer content analysis program. Families emphasized four themes: (a) the awareness that something was "wrong"; (b) the uncertain nature of the diagnosis; (c) excluding a family member; and (d) the ambiguous nature of family life with Alzheimer's disease.
Garwick
A W
AW
Division of General Pediatrics and Adolescent Health, University of Minnesota, Minneapolis 55455.
Detzner
D
D
Boss
P
P
D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D000544:Alzheimer Disease / Q000523:psychology*; D017028:Caregivers / Q000523:psychology*; D017281:Cost of Illness; D005190:Family / Q000523:psychology*; D005196:Family Therapy; D005260:Female; D005783:Gender Identity; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D008393:Marriage / Q000523:psychology; D008875:Middle Aged; D012803:Sick Role