The establishment of an HNPCC register.
Guidelines for the establishment of an HNPCC-register are presented. The aims of a register are discussed. Steps in identification of families and persons at risk are suggested, and possible sources of family and pedigree data are mentioned. The role of a register in surveillance, information of family members and medical colleagues, research and international collaboration are discussed.
Myrhøj
T
T
Danish HNPCC Register, Department of Surgical Gastroenterology, Hvidovre.
Bernstein
I
I
Bisgaard
M L
ML
Svendsen
L B
LB
Sondergaard
J O
JO
Mohr
J
J
Dahl
S
S
Bülow
S
S
D003123:Colorectal Neoplasms, Hereditary Nonpolyposis; D003718:Denmark; D006801:Humans; D012042:Registries / Q000592:standards*