Helping a family cope with a terminally ill baby.
This account can give only a brief glimpse of my experience working with a family with a terminally ill baby at home. Functioning in the extended role of health visitor, I became the family's key worker, avoiding the need for numerous visiting professionals. I have tried to capture the relationship that developed between this family and myself, which left me feeling personally and professionally enriched.
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Davies
D000223:Adaptation, Psychological; D002675:Child, Preschool; D003152:Community Health Nursing; D003711:Demyelinating Diseases / Q000451:nursing; D005260:Female; D006801:Humans; D007223:Infant; D008297:Male; D010287:Parent-Child Relations; D011368:Professional-Family Relations; D013727:Terminal Care