Caring for medically fragile children at home: the parent-professional relationship.
Forty-eight mothers and fathers caring for a medically fragile child at home completed questionnaires and were interviewed about the impact of this caregiving on their family and about their relationship with home care professionals. Factors contributing to a positive parent-professional relationship were professional competence, genuine caring for the child, and respectful, supportive collaboration with the family. More hours of care provided by home health aides increased mothers' strain with the professional caregivers; more hours of care from nurses increased fathers' strain. Family cohesion, family organization, and support from the community reduced the amount of strain parents reported having with home care providers. Implications for training providers and reducing the negative impact of home care are discussed.
Patterson
J M
JM
Maternal and Child Health Program, School of Public Health, University of Minnesota, Minneapolis 55455.
Jernell
J
J
Leonard
B J
BJ
Titus
J C
JC
D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D002983:Clinical Competence; D003625:Data Collection; D004645:Empathy; D005260:Female; D006701:Home Nursing / Q000523:psychology*; D006801:Humans; D008297:Male; D010290:Parents / Q000523:psychology*; D010358:Patient Participation; D011368:Professional-Family Relations; D012044:Regression Analysis; D012307:Risk Factors; D012494:Sampling Studies; D012944:Social Support; D013315:Stress, Psychological / Q000453:epidemiology / Q000517:prevention & control / Q000523:psychology*; D016526:Workload