title: [Partnership status in long-term home ventilation of amyotrophic lateral sclerosis patients].
abstract: Described is the development of the intrapartnership dynamics in a case of home ventilation of a spouse having amyotrophic lateral sclerosis. Led in a heated manner until recently, the ethical discussion on the pros and cons of long-term (home) ventilation could be greatly enriched by introducing relevant systemic views and reasoning. So far, however, there are no published observations in this field.
authors.affiliation: Neurologische Klinik, Universität Erlangen-Nürnberg.
authors.forename: T
authors.initials: T
authors.lastname: Rechlin
authors.forename: M
authors.initials: M
authors.lastname: Weis
authors.forename: P M
authors.initials: PM
authors.lastname: Brenner
authors.forename: B
authors.initials: B
authors.lastname: Neundörfer
mesh_terms: D000690:Amyotrophic Lateral Sclerosis / Q000523:psychology / Q000534:rehabilitation*; D017028:Caregivers / Q000523:psychology*; D017281:Cost of Illness; D003422:Critical Care / Q000523:psychology; D003863:Depression / Q000523:psychology; D005260:Female; D006701:Home Nursing / Q000523:psychology*; D006801:Humans; D008297:Male; D008393:Marriage / Q000523:psychology*; D008875:Middle Aged; D010348:Patient Care Team; D010351:Patient Discharge; D012121:Respiration, Artificial / Q000523:psychology*; D012803:Sick Role; D012944:Social Support
vernacular_title: Partnerschaftssituation unter einer Langzeitheimbeatmung bei amyotrophischer Lateralsklerose (ALS).