title: [Intrafamilial bone marrow donation: the role of the parents].
abstract: Bone marrow transplantation (BMT) is the last chance of recovery for some children suffering from malignant hemopathy or congenital blood disease. BMT with related donor radically alters previous family relationships: each member of the nuclear family becomes actively involved. Parents and siblings all undergo HLA typing. Only 30% of those who would benefit from bone marrow transplantation are lucky enough to have an HLA matched related donor, brother or sister. Our retrospective study concerned related donors and their parents. This paper reports the parents study. It was carried out at Strasbourg University Hospital. Parents were invited to speak about the child's illness, the graft reasons and their own position to regarding the choice of donor. Semi-structured interviews were used and their content analysed. The results highlight the expression by the parents of the need to maintain some control over the action which will save their child and establish an other gift system to keep their parental status.
authors.affiliation: Service psychothérapique pour Enfants et Adolescents, Hôpitaux Universitaires de Strasbourg, France.
authors.forename: A
authors.initials: A
authors.lastname: Danion-Grilliat
authors.forename: C
authors.initials: C
authors.lastname: Bursztejn
authors.forename: A
authors.initials: A
authors.lastname: Babin-Boilletot
authors.forename: P
authors.initials: P
authors.lastname: Lutz
authors.forename: R
authors.initials: R
authors.lastname: Ebtinger
mesh_terms: D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D016026:Bone Marrow Transplantation / Q000379:methods* / Q000401:mortality / Q000523:psychology; D002648:Child; D002675:Child, Preschool; D002755:Choice Behavior; D005260:Female; D006650:Histocompatibility Testing; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007389:Internal-External Control; D008297:Male; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D012189:Retrospective Studies; D012380:Role; D015996:Survival Rate; D014019:Tissue Donors / Q000523:psychology*
vernacular_title: Don de moelle osseuse intrafamilial: la place des parents.