title: Screening infants for neuroblastoma: the parents' perspective in false-positive cases.
abstract: The objective of this study was to ascertain the reactions and experiences of parents whose children were defined as false-positive cases in a research program of screening 6-month-old babies for neuroblastoma. Parents of seven of the eight infants falling into this category participated in the study. Parents of five children described themselves as worried/very worried at the positive result, some contemplating the treatment involved and the possibility that their child could die. Parents waited a maximum of 3 days before the clinical investigations took place. The mother of one child was dissatisfied with the handling of the investigations, reporting a lack of information and little opportunity to discuss questions; she was subsequently more anxious about her child. Parents of two children reported lasting "concerns" that they attributed to neuroblastoma screening.
authors.affiliation: Department of Child Health, University of Newcastle upon Tyne, United Kingdom.
authors.forename: S
authors.initials: S
authors.lastname: Bell
authors.forename: L
authors.initials: L
authors.lastname: Parker
authors.forename: M
authors.initials: M
authors.lastname: Cole
authors.forename: A W
authors.initials: AW
authors.lastname: Craft
mesh_terms: D005189:False Positive Reactions; D006801:Humans; D007223:Infant; D009447:Neuroblastoma / Q000175:diagnosis* / Q000523:psychology; D010290:Parents / Q000523:psychology