title: [Care and experiences of 20 set of parents concerning the death of children in a surgical intensive care unit].
abstract: OBJECTIVE
  To gain insight into the attitude and experiences of parents concerning the death of children in a paediatric surgical intensive care unit of a University Children's hospital.
  
  
  METHODS
  Retrospective evaluation of records from 1988-1992, supplemented with semistructured interviews in the second half of 1992.
  
  
  METHODS
  Sophia Children's Hospital-University Hospital Rotterdam.
  
  
  METHODS
  The evaluation concerned 104 children. In 36 children death was a direct consequence of their illness, 11 died unexpectedly after an unsuccessful attempt at resuscitation, and in the remaining 57 treatment had not been initiated or had been withdrawn. Six months after the death of their child, twenty couples of parents of 20 children were asked after their experiences before, during, and after this death; in addition they were asked whether they would appreciate a longer contact with the hospital.
  
  
  RESULTS
  Most parents chose to be present at the moment of dying. The parents generally highly appreciated the talks about the decision-making process and about coming to terms with the loss of their child, both with doctors and nurses. Most also appreciated a talk at some later time.
  
  
  CONCLUSIONS
  The results from this study indicate that structured guidance of parents concerning their child's death in the form of a counselling programme, is advisable.
authors.affiliation: Academisch Ziekenhuis Rotterdam-Sophia Kinderziekenhuis, afd. Kinderheelkunde.
authors.forename: M
authors.initials: M
authors.lastname: Mourik
authors.forename: D
authors.initials: D
authors.lastname: Tibboel
authors.forename: J A
authors.initials: JA
authors.lastname: Hunfeld
authors.forename: J
authors.initials: J
authors.lastname: Passchier
authors.forename: J J
authors.initials: JJ
authors.lastname: Out
authors.forename: J C
authors.initials: JC
authors.lastname: Molenaar
mesh_terms: D000328:Adult; D002648:Child; D002675:Child, Preschool; D016638:Critical Illness / Q000401:mortality; D003643:Death; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D015278:Intensive Care Units, Pediatric; D008297:Male; D010290:Parents / Q000523:psychology*; D011368:Professional-Family Relations; D012189:Retrospective Studies; D012944:Social Support
vernacular_title: Zorg en ervaringen van 20 ouderparen rond het overlijden van kinderen op een afdeling Chirurgische Intensieve Zorg.