title: Application of primary nursing within a team setting in the hospice care of cancer patients.
abstract: A qualitative study was conducted to obtain a deeper understanding of the hospice care of terminally ill cancer patients, where care was delivered via a primary nursing system combined with a team setting. Relatives of terminally ill cancer patients (n = 20) and the personnel (n = 8) participated in open-ended interviews. Phenomena relating to the philosophy of primary nursing and the hospice movement (continuity; closeness; accountability 24 h/day; individualized care; satisfied physical, psychological, social, and spiritual needs; and support to relatives) were experienced by the relatives, nurses, and physician as "good care." Most of the phenomena defined as important needs by the relatives and personnel were met when the primary nurse was on duty and the team was intact. Needs that were unmet were mainly a result of lack of continuity. Caring for the terminally ill via primary nursing in a team setting was regarded as two-sided by the nurses. It was seen as stimulating and rewarding, as well as demanding and burdensome. Therefore, the need for support to the nurses involved was deeply stressed.
authors.affiliation: College of Health and Caring Sciences, University Hospital, Umeå, Sweden.
authors.forename: E
authors.initials: E
authors.lastname: Athlin
authors.forename: C
authors.initials: C
authors.lastname: Furåker
authors.forename: L
authors.initials: L
authors.lastname: Jansson
authors.forename: A
authors.initials: A
authors.lastname: Norberg
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D003266:Continuity of Patient Care / Q000706:statistics & numerical data; D005260:Female; D017051:Hospice Care / Q000523:psychology / Q000706:statistics & numerical data; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000451:nursing* / Q000523:psychology; D009746:Nursing, Team / Q000706:statistics & numerical data; D011321:Primary Nursing / Q000706:statistics & numerical data; D012944:Social Support; D013548:Sweden; D013727:Terminal Care / Q000523:psychology / Q000706:statistics & numerical data