title: Quality of life and daily management of children with rheumatic disease.
abstract: Appropriate management of the daily life of patients with rheumatic diseases is an important part of therapy for favorable results and a high quality of life. At home, gymnastic exercise, night splints and appropriate fun activities will help to preserve the function of affected joints of patients with juvenile rheumatoid arthritis (JRA). Improvement of home fixtures according to patient disability will provide a higher quality of life for the patients. The patient should be helped to perform as many school activities as would normally be possible. Instructional charts for management of school life for patients with JRA and systemic lupus erythematosus is shown in this article. Cooperation with school personnel is also crucial to support the patient emotionally and physiologically. For the best long-term treatment and a good relationship between patient and physician, comprehensive management is essential. Not only physicians, but also psychiatrists, occupational therapists, physical therapists and social workers should be involved in the treatment of children with rheumatic diseases.
authors.affiliation: Department of Pediatrics, Faculty of Medicine, School of Allied Medical Science, Kagoshima University, Japan.
authors.forename: S
authors.initials: S
authors.lastname: Takei
authors.forename: M
authors.initials: M
authors.lastname: Hokonohara
mesh_terms: D000203:Activities of Daily Living; D002648:Child; D005081:Exercise Therapy; D006801:Humans; D010290:Parents / Q000523:psychology; D010806:Physical Education and Training; D011788:Quality of Life; D012216:Rheumatic Diseases / Q000523:psychology / Q000534:rehabilitation*; D012574:Schools