title: The impact of spina bifida on the medical services of Newfoundland and Labrador.
abstract: This institution receives all live spina bifida patients from Newfoundland and Labrador. The aim of this study is to determine the outcome of these patients and the impact on the medical system. On a retrospective chart review, 274 patients born between 1967 and 1990 were studied. An analysis of the statistical variables showed that the incidence per 1,000 live births has remained stationary in Newfoundland and Labrador; there is a slight female predominance; 64% were born to young mothers and the peak incidence occurred in March, April, and May. A total of 179 patients of 254 who underwent surgery were alive and underwent rehabilitation programmes. Only 35% are wheelchair bound; the rest are ambulatory. One hundred sixty-one are of school age or older, 78 are in regular high school (3 dropouts), 36 are in special education, 6 graduated from high school, 4 are in university, 15 had no neurological deficit, 7 were lost in follow-up, 5 died, 9 had gross mental retardation, and 1 is the mother of three normal children. To attain these results these patients had multiple admissions and surgical procedures and the patients are seen twice a year in a rehabilitation and multidisciplinary clinic. From this study, the utilization of the medical services and impact on the community is great. However, the majority of these patients appear to attain a surprisingly high quality of life.
authors.affiliation: Department of Surgery, Charles A. Janeway Child Health Centre, Memorial University of Newfoundland, St John's, Canada.
authors.forename: H
authors.initials: H
authors.lastname: Laishram
authors.forename: R
authors.initials: R
authors.lastname: Kennedy
authors.forename: F
authors.initials: F
authors.lastname: Maroun
authors.forename: D
authors.initials: D
authors.lastname: Price
mesh_terms: D005260:Female; D006296:Health Services / Q000706:statistics & numerical data*; D006801:Humans; D015994:Incidence; D007231:Infant, Newborn; D008297:Male; D009523:Newfoundland and Labrador / Q000453:epidemiology; D011788:Quality of Life; D017678:Sex Distribution; D016135:Spinal Dysraphism / Q000453:epidemiology* / Q000523:psychology / Q000601:surgery; D015996:Survival Rate; D016896:Treatment Outcome